in my last update on ronan, he had just had a small surgery to replace the port in his chest. last weekend, that new port became infected, landing him back in the hospital for four days while doctors ran tests and gave him antibiotics to help fight off the infection.
another symptom of ronan's DC is the abnormal and fragile growth of his fingernails. i'll have to try and get a good close up shot of them, so you can see what i mean...
four days is a long time for anyone to be cooped up in a hospital bed, and although there are many people in the world who have to stay confined much longer than four days, it was a little rough for ronan and his family after a while, so a much-needed outdoor walk took place.
i'm still struggling to obtain approval from city of hope to document ronan's time once he goes in for transplant later this month. i understand that privacy of patients being important, and that ronan will only have limited time given for visitors, but i plan to contact the hospital again tomorrow and see what else i can do to get at least a small amount of time with him and his family while they're there. it is such an important (and lengthy) part of his journey, if not the most important. it would be a shame if it weren't visually represented somehow.
tomorrow ronan has another eye surgery. afterwards, i'll head over to spend the evening with his family. they only have ten days left at home together before he's admitted and the long process of transplant begins. i'm really going to miss hanging out with him as much. he really is a rad little dude.
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